Our family story with Children’s Mercy begins a little before we actually started being seen at this hospital. We had lost three babies in a 13 month time frame. When we became pregnant with Declan our hearts were full of excitement and fear. We started being seen weekly at just 16 weeks when they saw his cerebellum was measuring small. We were offered to terminate the pregnancy at 23 weeks due to the doctors at another hospital thinking he would have no quality of life (and boy were they wrong.) That option was quickly denied and our weekly care continued. At one of our scans at 23 weeks a spot was found on the sacral curve of his spine during an ultrasound. We knew then that we were probably looking at a Spina Bifida baby, but the ultrasound wasn’t clear enough to be definite. To be sure we needed to wait until 31 weeks in the pregnancy to have a fetal MRI done. Let me tell you, this was super uncomfortable, but we got the answers we needed! The Doctors were able to see that Declan had myelomeningocele, which is the most severe form of Spina Bifida. It was affecting his sacral curve, they also found that his cerebellum was in fact not measuring small but that he had Christi 2 malformation and his cerebellum was just pulled down into his spinal canal. After that appointment our care was transferred to Children’s Mercy. We than began to set up appointments to meet Declan’s new care team (and boy did I underestimate how many there would be.) From the very first appointment I felt more at ease about the journey we were about to take with our miracle boy. All of the Doctors, nurses and surgeons took their time to explain everything to me that would be happening during ge rest of our pregnancy. Due to my high risk factor I was going to be moved to a Ronald McDonald House at 37 weeks in preparation to be induced at 39. And of course since pregnancies never go as planned I was taken by ambulance to Children’s Mercy at 36 weeks and 4 days on 11-09-19. My labor vaulted and I moved to the Ronald home just one block away. On 11-11-18 Declan decided it was time to make his appearance and we got the show on the road! After delivering Declan was moved to the NICU. He underwent repair surgery on his spine at 18 hours old and was in the NICU for 12 days before we could finally bring him home! Declan had some nerve damage during surgery and has been participating in physical therapy since he was 7 weeks old, they are hopeful that with the therapy and braces he will ambulate! Children’s has been apart of our family for what seems like forever. The NICU nurses were amazing, the Ronald McDonald House was nothing other than perfect, our son was given a chance at a new life and a mother and father were given the chance to love and care for another baby, a miracle baby.