Please consider supporting the creation of a Kernicterus Center of Excellence at Children's Mercy Hospitals and Clinics. The children who suffer from this disease deserve the very best. And we aim to provide them with the very best care through innovative research efforts.
The Division of Neurology at Children's Mercy strives to improve the lives of children with neurological disorders through the integration of evidence-based clinical care, education and research. Our family-centered, interdisciplinary approach is designed to encourage parents and families to make informed decisions while promoting health, optimal function, and quality of life in children with neurological disorders.
Services for children with Kernicterus at Children's Mercy include testing, referrals, evaluation and treatment. Yet there is much more to be done. We are presented with a unique challenge and opportunity to make a difference in the lives of children who suffer from this devastating disease. The Kernicterus Center of Excellence is needed to prevent kernicterus and bilirubin induced neurological disorders (BIND), to drastically reduce the cost of screening and prevention activities, to improve the treatment of Kernicterus and to search for a cure for Kernicterus. We must develop new tests to precisely determine the risk of Kernicterus in newborn babies, new methods to prevent Kernicterus and new treatments for children (and adults) with Kernicterus.
Basic science and translational science is needed to achieve these goals. Basic science will tell us how bilirubin causes Kernicterus and brain damage. Translational science will allow us to bring what we learn from clinical science to benefit children and their families. Research will be conducted at the Kernicterus Center of Excellence, utilizing a lab at the University of Kansas and facilities at Children's Mercy. Studies will be done in collaboration with scientists at the University of Missouri-Kansas City, the University of Kansas and other academic centers. In addition, a database of Kernicterus children will be developed.